Hi Natalie,
I'm really sorry to bother you but I really do feel it is important to share this with you. I am feeling a little disheartened today.
At a time when I know in my heart we should absolutely be focusing on the positive things James IS achieving on his own and at school compared to what he wasn't previously - the amount of negativity OOZING out of school at the moment is so difficult to bypass to those positive thoughts.
At home we honestly feel like we are doing everything that we can to assist with his needs. At school they feel that they are trying everything to assist with his needs. James I can see is trying really hard when he remembers that he needs to put in effort, but honestly it really just feels like we're fighting this battle and it doesn't feel like we're going to get a win anytime soon - which I know every single person involved really needs right now.
I do so much reading and research that I'm beginning to feel like I live in this ADHD bubble world on my own. The problem here is that no matter how much we help or put things into place - ADHD is horrible and it will never go away, not for 1 second - life as we (James and family and school etc) know it will always feel so hard. We're ALL exhausted and the cracks really are starting to show.
I have read so many things in regards to different medications, elimination diets, behaviour modification, assistive aids, useful prompts (the list goes on and on) and I realize how enormous this entire situation is.
All we want for our son is for him to feel normal and to feel like he fits in with his peers in class and social situations and activities. I guess we're concerned at how slow the progress is to assisting him to get to this point - all we see are the same issues yet he continues to get older.
Having Luke in high school we are VERY aware of the workload and expectations of them when they enter high school and we're extremely concerned that James simply will never reach this point of readiness at the pace he is moving now. I know these things cannot be rushed and he will achieve as his brain obtains the capability to achieve but we're questioning whether or not we're doing enough, or if what we are doing is the right course of action.
I know this appointment with the psychologist may very well be what we all need. As much as we want to send James in for speech therapy and occupational therapy and any assistance we can get him into, the reality is we know that all of this is useless and a waste of time and money if James doesn't want to help himself. We need some way of sparking, not his interest but his need to help himself grow and achieve and get better at managing the issues he is dealing with - we just aren't sure how to do this.
I apologise for the offload but it doesn't really feel like we get the time to really talk about our concerns about James when we do meet up. My last email mentioned how we really felt he had SPD issues that were affecting him and the topic felt to be brushed aside when I mentioned it on our last visit.
You mentioned wanting to get James re-assessed but I'm not really sure what the plan of action or time line around this is. If we could possibly come up with a very clear plan of action on how to get the re-assessment done and all our concerns addressed and if need be, assessed, that would be very much appreciated.
We put our trust in you to help our son - which you have done. We just feel that there are way more questions than answers at this point in time that we'd like to address. I'm really not good at softening the blow of my words in an email, so I do apologise if any of this feels like its aimed at you - this is ABSOLUTELY not my intention. We're just feeling lost and need clear direction again.
We really do appreciate your time - thank you for listening.
Kind regards
At home we honestly feel like we are doing everything that we can to assist with his needs. At school they feel that they are trying everything to assist with his needs. James I can see is trying really hard when he remembers that he needs to put in effort, but honestly it really just feels like we're fighting this battle and it doesn't feel like we're going to get a win anytime soon - which I know every single person involved really needs right now.
I do so much reading and research that I'm beginning to feel like I live in this ADHD bubble world on my own. The problem here is that no matter how much we help or put things into place - ADHD is horrible and it will never go away, not for 1 second - life as we (James and family and school etc) know it will always feel so hard. We're ALL exhausted and the cracks really are starting to show.
I have read so many things in regards to different medications, elimination diets, behaviour modification, assistive aids, useful prompts (the list goes on and on) and I realize how enormous this entire situation is.
All we want for our son is for him to feel normal and to feel like he fits in with his peers in class and social situations and activities. I guess we're concerned at how slow the progress is to assisting him to get to this point - all we see are the same issues yet he continues to get older.
Having Luke in high school we are VERY aware of the workload and expectations of them when they enter high school and we're extremely concerned that James simply will never reach this point of readiness at the pace he is moving now. I know these things cannot be rushed and he will achieve as his brain obtains the capability to achieve but we're questioning whether or not we're doing enough, or if what we are doing is the right course of action.
I know this appointment with the psychologist may very well be what we all need. As much as we want to send James in for speech therapy and occupational therapy and any assistance we can get him into, the reality is we know that all of this is useless and a waste of time and money if James doesn't want to help himself. We need some way of sparking, not his interest but his need to help himself grow and achieve and get better at managing the issues he is dealing with - we just aren't sure how to do this.
I apologise for the offload but it doesn't really feel like we get the time to really talk about our concerns about James when we do meet up. My last email mentioned how we really felt he had SPD issues that were affecting him and the topic felt to be brushed aside when I mentioned it on our last visit.
You mentioned wanting to get James re-assessed but I'm not really sure what the plan of action or time line around this is. If we could possibly come up with a very clear plan of action on how to get the re-assessment done and all our concerns addressed and if need be, assessed, that would be very much appreciated.
We put our trust in you to help our son - which you have done. We just feel that there are way more questions than answers at this point in time that we'd like to address. I'm really not good at softening the blow of my words in an email, so I do apologise if any of this feels like its aimed at you - this is ABSOLUTELY not my intention. We're just feeling lost and need clear direction again.
We really do appreciate your time - thank you for listening.
Kind regards
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